The Driving Off the Cliff Metaphor

If there isn’t another way to describe my emotions over the last month, the last year to see what’s ahead for the next year, put it this way.

Imagine you’re driving a “Crappy American car” as I liked to describe the Big 3 autos; and that Crappy American car just like any other that will sputter unexpectedly. The car looses control. You try everything to avert a major disaster.

You’re up against a cliff and the road. But lets say there is a Big Scary Truck that is carrying hazardous materials. What do you do? Do you plow into the BST or go off the cliff and risk your life?

If you were a sane person, you’d drive off the cliff, to prevent a major disaster going into the BST.

“The system” in my state, the “supports” (the lack thereof) and the out of control government both on the state and Federal level is this Crappy American car. All the things I’ve previously discussed since inception in October is what this car is made out of.

You have no choice to avoid disaster, you’re going to wreck no matter what. Your peddles are failing, the steering wheel is about seconds to lock up.

And this is where I am right now. I can’t seem to try to navigate this broken car that I am riding at a “high rate of speed.” I have no driving force. I’m a passenger in the driver’s seat. There is no 9-1-1/Tier 2/3 helpline  for hopeless autistics. I have to navigate this myself.

And sadly the only option is to drive off the cliff. Will I survive? Who knows. At this point what worse can happen? Or is the worst yet to come?

I can’t answer that question. Because I am at a loss for answers. Just asking unanswered questions.

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Where’s Peace?

It would be an understatement that the “world’s on fire.” And not to far away in our back yard. There seems to be too much domestic violence in mass attacks, and it’s a little unnerving that our President cannot do his job and punish the animals who destroy other family’s lives. (Oh I forgot, people voted for the President so he could give autistic people more rights…oh well why have I been stuck since he’s been president?)

Closer to home, it seems that my day program is sputtering too. Sudden changes to schedules near the Christmas time period and yet it seems that staff and clients are in a mess. Yet, I am supposed to also meet Concord’s narrative of “everything is awesome”; there is nothing wrong with “the system”, all of our micro-managing of pushing “community based supports” is working perfectly as planned. Maybe for Bartlett, maybe not so much for say Hudson.

I don’t understand this. There is so  many autistics plus other developmentally disabled people in this state – and yet “the adults in the room” seem to act like children and pretend nothing is wrong until they see the unintended consequences (opps, was that a “microagression theory”) come into fruition in a tragic way.

To say there is not an autism crisis to borderline autistics, and adults would be an understatement, as I stated numerous of times since October.

Your Tax Dollars at Work: NH Council on ASD

In May of this year, I joined in a focus group lead by a project leader at the New Hampshire Council on Autism Spectrum Disorders focusing on several issues. It took place at an annual conference in upstate.

It is now almost Thanksgiving, and according to inside sources (whom I won’t name publicly) have said they will release the report till next spring – nearly a year after I would join the group.

Why in the hell is the special needs system so slow to address an urgent concern to any citizen with autism in New Hampshire? Why are the mothers of  10 year olds running the show? Why do we have out of staters on the board? What has this Council have done for everyone in this state?

I’m really disturbed by the politics in Concord, and the politics within autism, and the politics of Concord plus autism in New Hampshire.

Our favorite pasttime is what really hurts all autistics in this state. It’s time for people have accountability, strict timelines (i.e. get the funds, use it, and get the report done in an urgent matter.)  If you can’t get the time to do it to take care of your autistic son, then outsource it to someone who can get it done in months, not years.

Or expect to see more hopeless autistics by year 2020.

Denial by the local Disability Rights Center

2017 Preface: The actions by the DRC was yet another lesson I learned about authority, the boundaries and the ability that anyone in Concord (as the DRC is a special interest group) can also talk to their fellow people like children. As I gotten beaten up in 2015, I learned the hard way that authorities are as hard as our state’s bedrock, where the state and local government is also part of the “Granite” State…hehehe!

The DRC gets tons of requests blah, blah, blah is a load of crap. Yeah tell me that when I call them and was rushed like it was my fault for not understanding.

The next consecutive denial in the Merrimack NH Police Department debacle was the legal assistance organization in Concord called the Disability Rights Center. The organization is a delusional special interest group that thinks New Hampshire is still progressive in special needs services, and yet there was no such thing is discrimination and racially biased police departments.

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Why I do not Like Managed Care

I’m all for capitalism.

I’m all for reducing excessive costs.

I’m all for helping the needy, especially people like me who can’t take care of himself every hour and minute of the day. (That’s not a lie, and if I am cutting myself short – then so be it!)

The problem today is the biggest fear I have that will lead in to year 2020 , the year of the Hopeless Autistic. It’s Managed Care.

Managed care on the abstract, is supposed to improve quality of life for people who have Medicaid plans. Some people who are on Medicaid don’t have a Primary Care Provider or their “doctor”. Also some may be over or even under appropriating their Medicaid funds for their healthcare.

The problem is what was once a state controlled setup is now being outsourced to for-profit companies that have to deliver “shareholder value” in a quarter to quarter basis. Whether or not its based in my state is illrelevent. I’m all for provider diversity, if the company is based in the south, I could care less. I can’t name anyone in the Medicaid system in Concord form a lineup, and as previously mentioned, the power players in Concord do not know the brutal realities in their own state, so that ridiculous argument from the far left moonbats have that DEBUNKED!

The problem is what Medicaid used to be infinite, is now narrow-focused (back to a “cookie cutter” system) and what if your doctor is in one plan or company and another doctor in another?  And imagine the other part of Medicaid that is used for day services for every type of disability? A plan for Asperger’s and a plan for the low IQ, but if you’re in the middle you’re screwed?

I’ve spoken to many professionals in regards to me and they have nothing nice to say about any of the manged care providers. One woman said the New Hampshire Healthy Families was like dealing with a stubborn 3 year old child! That is my managed care provider!

And this is what many autistics are up against when the GOP basically forces the “Tax and Spend Democrats” agenda (without any facts to back it up and use improper English like how I wrote the quoted phrase) and forcing people to “Vote the Gang of Seven [because we will stick to 1950s agenda because ‘it worked’]”

I’m not going to let the Democrats off the hook. Their propaganda is just as bad, blaming the other party and exploiting the special interests for their own “capital.”

The illegal aliens in this state? I don’t think taking them off the rolls will save the state money because I don’t believe there are that many. It’s not to say they should be getting it the first place, I think it’s one of those GOP, templates that is more relevant in other states, but not as relevant as NH. I blame such template agendas on the Clear Channels of the world owning Rush Limbaugh and 700 tiny radio stations that carry cheap programing with cheap agendas and cheap people believing in the cheap agendas on a radio station you can get a better audience of getting a local talent shouting out of the window!

Unpublished Editorials: Discontinue support for the NH Council on ASD!

I never sent this for a letter to the editor, but I was this close to sending it. Not to long before I was going to submit this editorial; I met with a lady named Jennifer who is part of the said Council, at a conference in the state near the end of April. What was more disturbing was she dyed her hair blue and said to me that “it’s easier” to focus on blue because many people associate ASD as the single boy/blue color.

In anyway, while I didn’t actually submit this to the local papers, here is the original text:

To the editor,

As an autistic, I find it highly offensive on April 23rd, that Governor Hassan made a proclamation on Autism Awareness Month along with the state’s Council on Autism Spectrum Disorders. According to the Council’s website, they suggested for the people dress in blue. Blue colors refer to Autism Speaks, a corporate non for profit group that has a long time extremist reputation for an example condone murder against the autistic population.

I recommend people to get the spine-chilling truth by searching for “Autism Everyday” on YouTube. For a state that has allegedly lead on progressing the needs of the developmentally disabled; these actions speak louder than words and our state has stooped to a shallow level by endorsing Autism Speaks’ obscene propaganda.

As a citizen of this fine state suffering with a community who are treating my group of people like a stereotype – this is unacceptable for 2015 standards. From my research, the Council is a do-nothing group that has a negative potential – me and others – to go backwards not forwards. Not only that, they focus on a minority such as children when adults are the majority suffering with ASD. This Council should be shut down and give the money back to the tax paying citizens.

Steven Ayotte

If people don’t understand the last sentence, Michael Dell was quoted around 1997 when the late Steve Jobs returned to Apple, and he was quoted saying “If I were Apple, I’d shut it down and return the money to shareholders.”

 

Autism Speaks Can Go Away in NH

On this blog, I will be explaining (in much greater detail unlike the current self-interest groups of autistics) of Autism Speaks, and not only allowing autistics to speak, but how they have sponsored or even have had broadcast journalist or people in the broadcasting business speak about the disorder without good editorial controls.

Autism Speaks is an organization that is prayed upon by many in the Granite State despite only 4% of its annual funding going to the families themselves. Also a state where they believe churches and charity organizations should be funding all special needs individuals.

Well Autism Speaks won’t help with that.

Isn’t a little funny (not ha-ha funny) that an organization that is advocating a ” communication disorder” the ones that actually actually communicate to begin with? Isn’t a little funny (not ha-ha funny) that the people who run this organization worked in a business where it was important  to make sure you didn’t offend the general population (i.e, running a “Big 3” network, or say a large market TV station)?

More will follow with exclusive content you won’t hear from the far left self-interest groups.