In May of this year, I joined in a focus group lead by a project leader at the New Hampshire Council on Autism Spectrum Disorders focusing on several issues. It took place at an annual conference in upstate.
It is now almost Thanksgiving, and according to inside sources (whom I won’t name publicly) have said they will release the report till next spring – nearly a year after I would join the group.
Why in the hell is the special needs system so slow to address an urgent concern to any citizen with autism in New Hampshire? Why are the mothers of 10 year olds running the show? Why do we have out of staters on the board? What has this Council have done for everyone in this state?
I’m really disturbed by the politics in Concord, and the politics within autism, and the politics of Concord plus autism in New Hampshire.
Our favorite pasttime is what really hurts all autistics in this state. It’s time for people have accountability, strict timelines (i.e. get the funds, use it, and get the report done in an urgent matter.) If you can’t get the time to do it to take care of your autistic son, then outsource it to someone who can get it done in months, not years.
Or expect to see more hopeless autistics by year 2020.
I never sent this for a letter to the editor, but I was this close to sending it. Not to long before I was going to submit this editorial; I met with a lady named Jennifer who is part of the said Council, at a conference in the state near the end of April. What was more disturbing was she dyed her hair blue and said to me that “it’s easier” to focus on blue because many people associate ASD as the single boy/blue color.
In anyway, while I didn’t actually submit this to the local papers, here is the original text:
To the editor,
As an autistic, I find it highly offensive on April 23rd, that Governor Hassan made a proclamation on Autism Awareness Month along with the state’s Council on Autism Spectrum Disorders. According to the Council’s website, they suggested for the people dress in blue. Blue colors refer to Autism Speaks, a corporate non for profit group that has a long time extremist reputation for an example condone murder against the autistic population.
I recommend people to get the spine-chilling truth by searching for “Autism Everyday” on YouTube. For a state that has allegedly lead on progressing the needs of the developmentally disabled; these actions speak louder than words and our state has stooped to a shallow level by endorsing Autism Speaks’ obscene propaganda.
As a citizen of this fine state suffering with a community who are treating my group of people like a stereotype – this is unacceptable for 2015 standards. From my research, the Council is a do-nothing group that has a negative potential – me and others – to go backwards not forwards. Not only that, they focus on a minority such as children when adults are the majority suffering with ASD. This Council should be shut down and give the money back to the tax paying citizens.
If people don’t understand the last sentence, Michael Dell was quoted around 1997 when the late Steve Jobs returned to Apple, and he was quoted saying “If I were Apple, I’d shut it down and return the money to shareholders.”