Ethics Schethics

email screengrab

 

The reason why I don’t trust the National Alliance for Direct Support Professionals because their own damned speakers have to set boundaries for (excuse the air quotes) “students”! As shown in the screengrab the trainer from the July session clearly stated “Please contact me with any further questions related to direct support professionals, ethics and competencies.” Yeah because I’m going to ask “how’s your love life going?” This is a joke!

Also, this wasn’t intended to be a f—–g letter, nor should had the need to VIOLATE HIS OWN DSP CODE OF ETHICS by insulting MY intelligence!

My gawd and them hacks from Albany? Aren’t they a little ethically challenged?

I blame them for the desensitizing of the human race on that intellectual level.

The next two years will be interesting to see.

DSPs, the Lack of Money and Passion

From the Grapevine from my undisclosed day program in an undisclosed location: I overheard some conversations of one staff talking about money and a possible pay raise (or something like that.) The unnamed staff said something like she isn’t there for the money. I hope she’s happy working with her clients.

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Where’s Peace?

It would be an understatement that the “world’s on fire.” And not to far away in our back yard. There seems to be too much domestic violence in mass attacks, and it’s a little unnerving that our President cannot do his job and punish the animals who destroy other family’s lives. (Oh I forgot, people voted for the President so he could give autistic people more rights…oh well why have I been stuck since he’s been president?)

Closer to home, it seems that my day program is sputtering too. Sudden changes to schedules near the Christmas time period and yet it seems that staff and clients are in a mess. Yet, I am supposed to also meet Concord’s narrative of “everything is awesome”; there is nothing wrong with “the system”, all of our micro-managing of pushing “community based supports” is working perfectly as planned. Maybe for Bartlett, maybe not so much for say Hudson.

I don’t understand this. There is so  many autistics plus other developmentally disabled people in this state – and yet “the adults in the room” seem to act like children and pretend nothing is wrong until they see the unintended consequences (opps, was that a “microagression theory”) come into fruition in a tragic way.

To say there is not an autism crisis to borderline autistics, and adults would be an understatement, as I stated numerous of times since October.

Overprotecting Parents – Not Ethical?

I went to a workshop on “Code of Ethics” by a couple (for a lack of a better word) New York State snobs from the National Alliance of Direct Support Professionals. There were few things I agree with, many I just found not appropriate for the rank and file. Some staff (even run ins as late as the last month) do act pretty “bossy” and come off as hostile and aggressive.

I do not like a hands-off approach allowing an adult client to do whatever they want, because they have to assimilate to the “real world”. While DSPs (known as “caretakers”, etc.) do have duties to say stop someone from harming themselves to others, the problem is that if we put high standards to the bottom, what happens to the top portion?

I come from organizations (educational collaboratives, school districts, area agencies and day programs) where there is no ethical standards. The lack of ethics were not happening in small 2 people towns, no this was in the largest communities North of Boston and the downstate side of NH. They had no moral duty to protect taxpayers from Waste, Fraud and Abuse from department heads wanting to spend some money but couldn’t explain why because of “confidentiality reasons”. The largest Area Agency in this state for autistics and alike runs a lot like a corporate charity but also runs it like it’s an Enron or a Goldman Sachs, but yet despite the reputation in the inside circles, nothing has been done. The area agency is being the area agency.

Above is a primer to the ongoing discussion of “ethics”, but now I want to turn the focus to overprotecting parents. The ones who will manipulate children to their grave. The ones who will let their kids be “safe” and protect their psyche over their literal safety. How come there is no parenting standards for special needs? Why are parents exempt from ethical standards? How come the “professionals” (like psychologists) will drool over their parent’s inability to let them be free, and just admire them for their parenting when the child was very young. The kid grows up, and the “professionals” continue to drool over years old decent parenting. They don’t care to understand that the child is grown up, and they are so arrogant to understand the mother or father is overprotecting their kids and they think its OK.

Well its not!

If you have more than one kid, its better than having a single child. You have no rights to protect them so much to make them an icicle! All you’re doing is making the kid not wanting to do anything that they think may be too risky then you get upset at the kid of why your kid won’t grow or be challenged.

This is where the professional should be showing the parents the mirror and have their autistic-like tendencies be put into the child’s “3 year eval” since parents have no capability to ruining a kids brain.

Unless the NADSP or some other organization turns the tables of “ethics” away from caretakers and more towards the real threat, the parents, and the corrupt white collared hacks at the local school districts.

The Lack of Direct Support Professionals

2017 Update: I still have not found a dedicated DSP outside of my program.

For adults with autism spectrum disorders, at least in my backyard; finding good help is one thing; finding help at all is even worse.

Direct support professionals (also known as DSPs, caretakers, caregivers, respite workers, etc.) is supposed to be a growing trend by 2020. The difference between DSPs and the traditional sense, is there is more standards, competencies and even ethics. While it’s good in the abstract, I find it flawed as the c-suite will continue to possibly hire incompetent managers and continue to operate unethically.

For my case, a simple DSP to take me out for fun to get away from the horrible realities of living with autism in a region regressing in service delivery, oppressive special needs systems, etc, took nearly 6 months from concept to a possible new hire. I went through every professional acquaintances  and – nothing! Even my remaining Massachusetts connections – and no luck!

Is it a case of if its too good to be true then it must be?  or is it “I don’t want to work with an autistic, because they are slow childlike boys- I can’t stand those people.”

You know who I accuse this of? Bad leadership in New Hampshire. Bad training standards (because they are taught to find “flaws” with the individuals, glorify the negativity and dilute any positive abilities of the students or clients.)

What’s worse is the training is hard to come by here in this state with the various conferences relevant to special needs. I blame the Granite State being so desperate, they’ll take out of staters who clearly want to oppress the severely autistics and train future professionals the negativity as the headline and any positives as a footnote.

I’m in my late twenties, and I haven’t been active in any advocacy or became an agent of some change till recent years. But from what I’ve gathered from the outside was that the state’s better years could’ve been the days when the Great Stone Face was still up in Franconia Notch – nearly 12 years to the day. But around 2003, remember, many of them just became of age, or would become of age. So in the days of progress, there were few people on the autism spectrum as adults, as so many were children, and in those days many were suffocating of big heavy smoke of destructive political actions of the leadership of the time.

I feel like its worse living in New Hampshire and with autism than years past! Why are we settling to such a low level? I call this Unanswered questions.