Decoding Autism: Stop Coding The Condition!

From the other site published in winter

As I have explained a number of times, autism is a condition that impacts people. Not boys, not just kids, but adults too. Some develop later in their childhood years, and some apparently from the routine MMR vaccines and classify that as an “injury”. Or you have some nit wit of a celebrity who uses every semantics similar to a person with a cancerous condition of “beating the odds, my child is cured!”

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Decoding Autism: Stop Coding The Condition!

As I have explained a number of times, autism is a condition that impacts people. Not boys, not just kids, but adults too. Some develop later in their childhood years, and some apparently from the routine MMR vaccines and classify that as an “injury”. Or you have some nit wit of a celebrity who uses every semantics similar to a person with a cancerous condition of “beating the odds, my child is cured!”

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Parents of Severely Autistics Vendetta Towards Finding their “Voice”

Some days, I feel like I am in the middle ages, or the middle of the 20th century with backa– agendas against any or all autistics.

Because I understand the spectrum of the autism spectrum disorder, its diversity and complexity, I’ve always kept a netural tone. I’ve been a strong advocate towards inclusion of all members of the ASD world; and steal a page out of the playbook from the worlds of Down’s and the deaf and blind. They don’t want a cure. They want better treatment and better QOL standards. By no means, have I ever endorsed the “hip” nature to be autistic. I always kept a sensitivity to the “lower functioning”. But I’ve never spoke for them, and I don’t expect anyone should speak for me. In fact no one should speak for me – PERIOD. I can speak for myself.

I can speak for how being told about my autism destroyed my entire life. I’m a talking and functioning guy saying how being told my autism destroyed my life.

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The Driving Off the Cliff Metaphor

If there isn’t another way to describe my emotions over the last month, the last year to see what’s ahead for the next year, put it this way.

Imagine you’re driving a “Crappy American car” as I liked to describe the Big 3 autos; and that Crappy American car just like any other that will sputter unexpectedly. The car looses control. You try everything to avert a major disaster.

You’re up against a cliff and the road. But lets say there is a Big Scary Truck that is carrying hazardous materials. What do you do? Do you plow into the BST or go off the cliff and risk your life?

If you were a sane person, you’d drive off the cliff, to prevent a major disaster going into the BST.

“The system” in my state, the “supports” (the lack thereof) and the out of control government both on the state and Federal level is this Crappy American car. All the things I’ve previously discussed since inception in October is what this car is made out of.

You have no choice to avoid disaster, you’re going to wreck no matter what. Your peddles are failing, the steering wheel is about seconds to lock up.

And this is where I am right now. I can’t seem to try to navigate this broken car that I am riding at a “high rate of speed.” I have no driving force. I’m a passenger in the driver’s seat. There is no 9-1-1/Tier 2/3 helpline  for hopeless autistics. I have to navigate this myself.

And sadly the only option is to drive off the cliff. Will I survive? Who knows. At this point what worse can happen? Or is the worst yet to come?

I can’t answer that question. Because I am at a loss for answers. Just asking unanswered questions.

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Unpublished Editorials: Discontinue support for the NH Council on ASD!

I never sent this for a letter to the editor, but I was this close to sending it. Not to long before I was going to submit this editorial; I met with a lady named Jennifer who is part of the said Council, at a conference in the state near the end of April. What was more disturbing was she dyed her hair blue and said to me that “it’s easier” to focus on blue because many people associate ASD as the single boy/blue color.

In anyway, while I didn’t actually submit this to the local papers, here is the original text:

To the editor,

As an autistic, I find it highly offensive on April 23rd, that Governor Hassan made a proclamation on Autism Awareness Month along with the state’s Council on Autism Spectrum Disorders. According to the Council’s website, they suggested for the people dress in blue. Blue colors refer to Autism Speaks, a corporate non for profit group that has a long time extremist reputation for an example condone murder against the autistic population.

I recommend people to get the spine-chilling truth by searching for “Autism Everyday” on YouTube. For a state that has allegedly lead on progressing the needs of the developmentally disabled; these actions speak louder than words and our state has stooped to a shallow level by endorsing Autism Speaks’ obscene propaganda.

As a citizen of this fine state suffering with a community who are treating my group of people like a stereotype – this is unacceptable for 2015 standards. From my research, the Council is a do-nothing group that has a negative potential – me and others – to go backwards not forwards. Not only that, they focus on a minority such as children when adults are the majority suffering with ASD. This Council should be shut down and give the money back to the tax paying citizens.

Steven Ayotte

If people don’t understand the last sentence, Michael Dell was quoted around 1997 when the late Steve Jobs returned to Apple, and he was quoted saying “If I were Apple, I’d shut it down and return the money to shareholders.”